My husband, Johnny, was diagnosed with a GBM in July of 2014. Before that we never heard about it. After all the research we could exhaust, we found only one doctor who would consider him a candidate for surgery and a trial program. We knew a good friend who was in this program and it looked that he was doing well. So we elected to go forward. It was a long surgery( 9 hours) and three weeks before he woke up. We did the preparations for the trial and prayed we would not be the placebo candidate. We must have been, because after 6 weeks of radiation and chemotherapy it only took two months for it to begin to grow back. After the highly potent 2nd radiation, since he was not a candidate for more surgery, Johnny’s physical life began to diminish. He lost physical control of most of his body. We basically carried this 6′ man every where he went. He lost his life to pneumonia 14 months later, because he was too weak to fight this common ailment. We had lost our friend who had fought his GBM months earlier. This disease seem to leave very few survivors, and not for any length of time. With all our claim to technology, we are not making strides in this area. Please fight with a vengeance this crippling dsease.
Wanda, what a horrible story. I can understand trying to do everything you can for the person you love most and getting repeatedly knocked down. The placebo portion of the clinical trials are particularly cruel, I think. If there is anything that puts science ahead of life, it’s that.
I wish your story ended differently; I hope mine does as well. I will fight as long as she’s willing to fight with me.
2 replies on “Alison McCarthy”
My husband, Johnny, was diagnosed with a GBM in July of 2014. Before that we never heard about it. After all the research we could exhaust, we found only one doctor who would consider him a candidate for surgery and a trial program. We knew a good friend who was in this program and it looked that he was doing well. So we elected to go forward. It was a long surgery( 9 hours) and three weeks before he woke up. We did the preparations for the trial and prayed we would not be the placebo candidate. We must have been, because after 6 weeks of radiation and chemotherapy it only took two months for it to begin to grow back. After the highly potent 2nd radiation, since he was not a candidate for more surgery, Johnny’s physical life began to diminish. He lost physical control of most of his body. We basically carried this 6′ man every where he went. He lost his life to pneumonia 14 months later, because he was too weak to fight this common ailment. We had lost our friend who had fought his GBM months earlier. This disease seem to leave very few survivors, and not for any length of time. With all our claim to technology, we are not making strides in this area. Please fight with a vengeance this crippling dsease.
Wanda, what a horrible story. I can understand trying to do everything you can for the person you love most and getting repeatedly knocked down. The placebo portion of the clinical trials are particularly cruel, I think. If there is anything that puts science ahead of life, it’s that.
I wish your story ended differently; I hope mine does as well. I will fight as long as she’s willing to fight with me.