Good news for a change…but wait…
Alison’s original tumor was huge. What was removed was the size of a grapefruit and that only represented about 80% of it. The fact she was walking around symptom-free for so long is a miracle in-and-of itself.
The remaining 20% was dealt with via radiation and chemo and after all that, that huge single mass was divided up into four discrete areas of tumor.
In the last MRI last week, two were not to be seen – which means that:
- technical error happened two months ago and there never were those two spots of tumor to begin with,
- a technical error happened last week and the tumors were missed, or,
- those two spots disappeared.
Of course, both 1 or 3 would be ideal for us. But we won’t know for months.
The other two spots of tumor are large.
The most dangerous one, in the middle of her head, is unchanged. And that’s actually pretty good news because she’s not had any meaningful treatment since January.
And now for what was the best part: The other known piece of tumor has shrunk.
Why that is, is anyone’s guess. Perhaps it’s the insane things I make her do. Perhaps it’s the lingering effects of the radiation. Perhaps it’s a combination of the two. We don’t know.
Actually, this would normally be astoundingly good news, but for us – for her – it’s never just good news. We always get a side dish of: “But wait…”
Last night, we were in the ER again – the 10th time in 10 months – because she’s acting the way she did earlier in the year: Sleeping all the time, out-of-it, and very nauseated.
Why that is, is anyone’s guess as well.
After a night of tests, they couldn’t figure out why, and they also noticed that her bloods are bad again. This time, however, I insisted we go home rather than spend another week in a hospital with people poking and prodding her only to not be able to figure anything out again. So late last night, brought her home.
The short theory is that the surgery we didn’t get in July, we shoulda gotten.
It’s never so straightforward, is it? Figuring out what is felicitous and what isn’t.
A month ago, I was thrilled they let her go home and skip that surgery.
Now, I’m not so sure. I’m not sure of anything these days. Except that I have to, somehow, find a way to get my family home. Somehow.
Location: the @#$@##@$@# hospital again
Music: This is the joy that’s seldom spread