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personal

When tomorrow comes

Eventually, eventually

Capture
Cooper Union, John Hejduk. c. 1971.

Me: Can you do one more set of exercises?
Her: I’m so tired.

Cooper Union is a private science and art focused college here in the City that’s miraculously granted each admitted student a full-tuition scholarship since it was founded in 1859. That’s changed slightly in the past few years but it’s still impressive.

The fact is that donations have kept the school afloat for all this time and enabled it to not just provide amazing things to its students, but the world as well – they have Nobel Prize winners, Fulbright Scholars, and countless other notable alumni who benefited from this generosity.

And generosity seems to be everywhere around us, particularly this past weekend, when Alison’s relatives got together along with her high school 1friends and had a fundraiser for Alison, which raised far more money than we imagined.

Because of Alison’s trip to the emergency room last week, we weren’t able to go but watching it unfold on Facebook was another humbling and moving thing for us.

The fact is that people donate to places and things like Cooper Union because they think that their money will help, not just the place being donated to, but others as well.

Alison spent almost her entire career working to help others in the world of non-profit. I feel that part of the reason we’ve had good luck with fund-raising is because she’s positively touched so many people. It’s part of why I love her so. I want her back in the world, helping it along.

As for me, I don’t know if I contribute much beyond random musings and trivia. For example, the thing that I always found most interesting about Cooper Union is that the building was built 1853 and it was built with elevator shafts.

But safety elevators weren’t invented until 1857. The reason that Cooper Union built elevator shafts four years before they were invented was because the builders were confident that someone would eventually figure out how to build a safety elevator. They planned today for their tomorrow.

Every day, I push Alison to try to get stronger. She’s weak from the pregnancy, three brain surgeries, three emergency room visits, infections, radiation, and chemo. I should really leave her alone.

But I can’t. I won’t.

Because, like those elevator shafts, I feel that we’ll figure this out eventually and she’ll need to be strong for the struggle ahead. We need to prepare for tomorrow because I hope that tomorrow comes.

With so many people helping us, I think we can get to eventually, eventually. We owe it to everyone to keep struggling.

Me: Just one more set?
Her: OK.

2
Pampered Chef helps make stress-free meals; they’re donating 20% of sales to Alison via this link.

I wanted to take a moment to thank Marybeth W. Madlinger, Meghan McCarthy, and Heather Nerwinski for all their help with the fundraiser this past weekend.

Below are local vendors that donated time, goods, and services to the event so if you’re at all interested in any of them, please click below for more information.

Younique cosmetics and skincare is donating 15% of all sales to Alison via this link until 2016.03.04.

 

5
Jamberry nail wraps is donating 15% of all sales to Alison via this link if you mention Alison.

 

6
Em’s Pens is donating a portion of sales if you mention Alison when you order here.

 

4

 

Thanks again to everyone to went and have continued to support us since this whole hell started.

 

\’

Location: home, of course
Mood: cautiously hopeful
Music: feeling very small underneath the universe

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personal

Stay, Gold

Stay Gold

Gold Statue
My dad told me a story once of a man who had a block of gold. He buried it in his yard and would dig it up periodically to admire it before burying it again.

One day, someone stole it and the man was inconsolable. But his friends told him to paint a rock gold and look at that. Because he didn’t use the gold, there really wasn’t a difference between a piece of gold and rock painted gold.

The moral of the story was that money has value only when it’s used properly. But I always thought it a weird story – the man knew what was real gold and what was paint.

Ended up bringing my wife to the emergency room again this past week. Was hoping to avoid it but we didn’t have a choice.

I’ll simply say that this time, I didn’t collapse to my knees but it was still pretty horrible. Waiting to find out more information and the waiting is excruciating.

I’m a lawyer, amongst other things. Not a doctor nor a nurse. I’m not qualified to do much of what I’m actively doing now. But I’m also an auto-didactic.

And the thing I need to figure out is how to save my family. Amazingly, Alison is not the only person in my life with a life-threatening aggressive cancer. In fact, there are three people I love in my life with life-threatening illnesses.

All of which seem to be reaching their nadir at once.

I think I’m of above-average intelligence. Figure most people think the same about themselves.

Yet, what’s the point of all the intelligence in the world if I cannot use to save my family? It’s like that guy with the piece of gold – all my intelligence is useless if I can’t use for the only thing that I care about in this rotten world.

Ever read The Outsiders? There was a kid there named Ponyboy that read a poem called Nothing Gold Can Stay.

So Eden sank to grief,
So dawn goes down to day.
Nothing gold can stay.

His friend Johnny implored him to “stay gold” in a world that’ll hollow out anything of value in you.

In my tin life, my family is only thing of any real value and they are all suffering. The only thing I want is for them to somehow stay.

I have to figure out a way to make that happen.

 

\’

Location: heading to the east side
Mood: weak
Music: I want it real. Run away with me now

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1,000 times an hour

Promises made, promises broken

Watercolor view of the UES, NY,

Nurse: Do you have her password?

Without getting too deep into it, the past week has been the most difficult week at home since November. And we’ve had some awful weeks in the past three months.

My insomnia makes this surreal experience all the more surreal. What little is in color is watercolored and runs together before fading to grey again.

The doc wants us to bring her back to the hospital but she was so distraught and confused the last two times that I feel it’ll only be worse a third time.

Ultimately, I have to make that decision and it is to keep her at home, however difficult that is.

Marriage is such an odd thing. You meet a stranger one night and, a little while later, you become family. To the point where I make decisions for her instead of her own parents, who have been totally supportive of all the choices I’ve made.

I have tremendous respect for them. Her mom is about the nicest person I know and her father – a war hero – is someone I would like to call a friend regardless of the reason why.

We got married five years ago this month. I told them I would always keep her safe.

I’m failing that promise right now. Keep thinking there must be something else I can do.

But there isn’t. There’s only the waiting.

The last time we were in the hospital, the nurse wanted to make sure I was family so she asked for the password I gave them when I admitted her.

It’s the same three words I’ve been saying 1,000 times an hour, every waking hour, since the beginning of November.

Me: Yes. It’s: “Please be ok.”

\’

Location: hell
Mood: struggling
Music: Skies turn to the usual grey

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Heavier than when I left

My thoughts are never far

Subway Station at Bowling Green NYC

Me: I’m off to the gym.
Her: (nods)

Wish I could give you good news about Alison and the rest of us but I can’t. New and unexpected miniature disasters visit us regularly, each one with it’s own particular set of grief and crazy.

It’s exhausting.

Haven’t been able to go fence, even though it’s around the corner, cause classes are only at night.

Did manage to get to my other gym this week, after not going for over a month.

While it’s not around the corner, it’s also not that far from me. Grab my gym bag, which never has much in it – mouthguard, clean clothes, water, and maybe my keys – and 18 minutes or so and I’m there.

It’s strange being back there. The older guys know better than to ask how I’m doing but newer people want to know details of my horror story, which I understand from a morbid curiosity point of view, but I go to forget my problems, not relate them.

Still, I try to focus on being there but it’s hard. My thoughts are never far from her. 90 minutes later, I’m done and start heading back home.

Even though the distance is the same, and my bag should be lighter since I drank the water and am wearing the clothes, instead home seems forever away.

And I struggle with a bag that seems even heavier than when I left.

Me: (cheerily) Hey beautiful, I’m back.
Her: (nods)

\’

Location: snowy NYC
Mood: struggling
Music: minor catastrophes bring me to my knees

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My job is to kill things that need to be killed

Giving us time

Redeemer Church in the Upper West Side
Years ago…

Her: Logan!
Me: (running over) What?!
Her: Spider. Kill it!
Me: Wait, what? Why?
Her: Your job here is to kill things.
Me: …that need to be killed. Spiders are our friends. (turning to spider) Arentcha, little guy?

Friends keep asking if they can stop by and take me out for a spot of rum or maybe bring me out to eat. They feel I need a break. Probably do.

The thing with me is that I have an addictive personality. It’s related to my insomnia, as I can’t turn off my mind.

Now, I feel that every moment of my time has to be spent finding a way of killing this monster that’s entered our lives.

I don’t go to the gym. Don’t cook. Don’t even have time to work.

Instead, I spend my time researching ways people somehow beat this cancer. The largest percentage of my time is wading through pages of medical jargon and separating the crackpot solutions from the things that actually have some science behind it.

All the while, hoping to find something that might lead us home. To our old mundane lives, with our old mundane problems.

Her: Kill it, Logan!
Me: Nope. I’m gonna name him, Hubert.

A Day For Alison

Regarding cooking, I rarely cook these days because my church has been sending us a jaw-dropping amount of ketogenic food – we’re on a ketogenic diet partly because of a well-researched podcast a female gym buddy sent me.

And the food has been organized by an amazing woman I met for the first time at my buddy Bobby’s memorial. She checks in on us regularly, as do many members of my church.

There’s even a fundraiser happening at the end of this month in New Jersey.

Information, donations, and time. These are the most valuable things to us right now, with time being the most valuable.

We just need more time.

 

\’

Location: home, of course
Mood: reasearch-y
Music: One minute I held the key, next the walls were closed on me

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