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Dear Son… 001

Beautiful and terrible things

Me and the kid

Dear Son;

As I write this, you are almost seven months old. I feel guilty that your Grandma McCarthy has been taking the most care of you because I need to focus on your mama.

But you’re always laughing, so I assume that you’re generally happy and oblivious to the terrible things around us. That’s actually why I’m writing you.

A fellow New Yorker – of which you are a proud member – named Frederick Buechner once said, “Here is the world. Beautiful and terrible things will happen. Don’t be afraid.”

(I will quote things to you a lot because I think other people say things far more eloquently than your pop can; you’ll have to learn to deal).

What Buechner said is true, with this caveat: The terrible and beautiful are often intertwined.

By all metrics, your mother should have died on December 10th, when you were just a month old. I say this terrible thing as plainly as I can.

But equally plainly, I tell you: Your mother came back an hour from death – crippled and half-blind – because she couldn’t bear being away from us. From you.

She came back with a titanium mesh where her skull once was. So when I tell you that she is made of titanium, I mean that both figuratively and literally.

She fights every day to see you and hopes to hold you again, like she did when you were born. She wants to see you sit, stand, walk, and run.

She wants to see you become you.

You know, on December 10th, you hadn’t yet learned how to laugh or smile? I think she came back to experience that.

Kid, that is love like I’ve never seen before. If that’s not beautiful, I dunno what is.

This letter is late, sorry. I’d meant to write it months ago but life got in the way. You’ll find that the life’s terrible things get in the way of your plans and dreams.

It’s the nature of the world to whittle you down to nothingness. One day it will win. We accept that in our family. But we fight the world every step of the way because we will not go quietly.

We struggle and scuffle until we’re breathless and weak. Life demands struggle.

Our family motto is a pictograph of a blade in a heart – we survive things that would kill other people. We survive.15207350313_c43e87a6b6_c

Know that the terrible things will come. But so will the beautiful things. They go hand-in-hand.

Your mother is the most beautiful thing that has come into my life and she came with this terrible thing. Neither of us knew. I would not change a thing, except maybe bring her to the hospital the day we met to get rid of this damn cancer. And buy more shares of Facebook. (Always invest your money – that’s another letter for another time).

I will love your mother until the day I die. You as well.

In any case, son: Here is the world. The price you pay to be here is to endure the terrible. So we pay our fare and we take our seat, come what may.

Don’t be afraid. Because you are our son and there is titanium in your blood.

Love,

Pop

Dear Son… 001
Dear Son… 002: Wait and wish
Dear Son… 003: Rain happens
Dear Son… 004: Understanding is gold
Dear Son… 005: Language is telepathy

 

Location: home, after almost a month in the hospital again
Mood: tired
Music: it was then that I knew only a full house gonna make it through

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You’re the hubs

One bite at a time

bed
There’s an old joke that goes:

Q: How do you eat an elephant?
A: One bite at a time.

Think that if I went back in time and saw all that she would have to go through, I woulda crumbled on the spot.

And yet, the dull drip of constant crises in our lives is almost routine now.

Last week was her first Mother’s Day and as well as her birthday.

She spent her birthday by her lonesome getting cut open yet again as we went to the emergency room for the sixth time.

That issue she had in April roared back in a spectacular way – blame myself for trying to keep her from staying yet another spell in the hospital. Perhaps if we just did it then, we wouldn’t be here now.

Wonder if I’m making any good/rational decisions at all. Constantly second guessing myself. There are moments where I wonder if I’ll make it with my sanity – or her’s – intact.

Me: Do you know who I am? Do you know where we are?
Her: (shakes head)

But what else is there to do but go on? And she does, somehow. A bite at a time.

Like I said, there are moments when I cannot believe we will do anything but crash.

But even in those darkest moments, when I sit by her bed and think all hope’s lost, she still manages to pick me up and make me think that we can get in front of this thing somehow. That we’ll make it.

Me: Do you know who I am? Do you know where we are?
Her: Yeah, you’re the hubs. (looking around) I can’t believe we’re here again.

\’

Location: the hospital, yet again. No river to be seen.
Mood: crushed
Music: I think I’m ruined. Didn’t anybody, didn’t anybody tell you?

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My favorite things

May be ok

The kid

For those long time readers of my blog, you know my favorite drink at home is aged rum – on the rocks with a slice of orange, to be specific.

And when I’m out and about, find it hard to resist a daiquiri or an old fashioned with rye.

My favorite foods are chiligyros, and dumplings. In no particular order.

My favorite place in the world is the pier at Riverside Park. My favorite thing to wear is my yellow leather jacket. My favorite things to do are wrassling, fencing, and cooking. In no particular order.

And up until five months ago, my favorite time of day was 10PM, when I went to bed and chatted with my favorite girl about our respective days.

But for the past five months, my favorite time of day has been 7:30 at night.

Because that’s when I would take a shower in my blue bathroom. And with the running water coming out of the best shower head and an exhaust fan that sounds like a wind turbine, I could lean against the shower wall and weep without my wife or little boy knowing.

For the first two months, it was every night I wasn’t in the hospital. Every goddamn night.

As the weeks wore on, it wasn’t every night, but it was still probably most nights.

But as of last week, my favorite time of day is the morning, when I take Alison out to the living room and she sees the baby wearing her pregnancy necklace and smiles.

And he smiles back at her and laughs. My two favorite people in the world.

For just a moment, I think that everything may be ok.

I wish and wish and wish…

\’

Location: ever at home
Mood: hopeful
Location: 20:00 yest, leaving office hating life
Mood: indescribable
Music: On silver stars I wish and wish and wish (Spotify)

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She’s still in the game

Still in the fight

Chad Hernandez
Whenever I’m gone from this blog for a while these days, you can assume it’s because something crazy is happening and I’m too busy to update. This past week was no exception.

We had to go to the hospital on Sunday – which happened to be my birthday – yet again, for both an MRI as well as a new issue that cropped up. After a good deal of negotiations back-and-forth, I managed to avoid our being admitted to the ER for a sixth time. We ended up making it home at 8PM that night.

But then we had some good(ish) news. Her MRI reading came back late – really late – the following day. No new growth. So, while that’s not the outstanding news of shrinkage, it’s far, far better than growth. And what’s more, this is no growth while she’s essentially not had any treatment since January 25th.

Perhaps the best thing is that the old Alison has been making more and more appearances at home. She smiles at the baby and at us, watches TV from time-to-time, and engages us in normal conversation.

Her: (looking at baby) There’s my sweet boy.
Me: He’s getting big – he wears 6-9 month old outfits at 5 months. All he wants to do is eat.
Her: (laughing) Well, he is your son.

It’s the most hopeful we’ve been in a while.

Because of all the turmoil, I’ve not been to the gym but I still regularly speak to my coach there. He was one of the first people I mentioned this to because of all the fundraising he and the gym has done. And because he’s a source of great comfort for me.

Me: Finally, some good news. It’s not great news but it’s definitely not bad/horrific news. We were certain that, after three months of her being in and out of the hospital, it would be bad. Even her doc prepped us for that.
Him: I’m so happy for you. Still in the game with a fighting chance. That’s all you need.

She’s still in the game. We’re still in the fight.


\’

Location: on a sunny street in Manhattan
Mood: cautiously hopeful
Music: If you can hold on, hold on

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My So-Called Thermonuclear Life

The other destructive elements of my life

World War II bomber in NYC
When the first atomic bomb was dropped on Hiroshima and Nagasaki, over 129,000 people were killed in moments.

I’ve met lots of people throughout the years that think that the technology of mass destruction stopped in 1945; that when we talk of nuclear weapons, we’re talking about the types of weapons that we used in World War II – 70 years ago. Unfortunately, that’s so terrifyingly far from the truth that it’s laughable. The bombs that killed those 129,000 people are now just tiny cogs in current thermonuclear weapons.

In fact, current thermonuclear bombs use the atomic bomb technology as just a trigger. See that image there where it says “fission bomb?” That’s an atomic bomb within a thermonuclear bomb.

Thermonuclear bomb

Think of a flintlock pistol; the atomic bomb would be equal to that tiny spark that the flint makes versus the bullet.

The situation with Alison is a thermonuclear bomb in my life. Yet I have two other things that are happening in my life that, individually, would be atomic bombs.

Each one of these three things has changed the course of my life forever. Each of these things would take up the entirety of this blog if not for Alison’s situation.

The thing is, this blog has always been my story. Always tried to respect the wishes of people that didn’t want to be part of it. So I can’t tell you the other two stories that take up the other 2/3s of my time, energy, and emotion.

You probably wouldn’t believe me if I told you anyway. Because I’m not sure I believe it.

And I just received some soul-destroying atomic news about one of the other stories this week.

Me: Did it…did it go well?
Her: (long pause) No. The doctor said there was nothing he could do.
Me: So what now?
Her: We wait. (sighing) And hope.
Me: That’s all I do these days.
Her: Don’t break. Your son needs you.
Me: He’s the only reason I don’t break.

Boom.

\’

Location: a very dark place
Mood: destroyed
Music: life is hard. It’s misery from the start. It’s dull and slow and painful.

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I’ve missed you so much

Your American Boy

It’s been five months since we started on this nightmare. It honestly doesn’t feel that long. The constant string of emergencies and sleepless nights make it just seem like one long, hellish, week.

Think one of the worst parts of it all is that the woman I knew has left. In her place is someone that I love no differently, but isn’t the woman I once knew.

This woman is always tired, scared, and confused. Perhaps worst of all, she’s silent. She can speak, she just doesn’t, choosing instead to stare out into the world but not take part in it.

It’s lonely when we’re together.

For those of you that have read this blog for a while, this is a far cry from the clever and confident woman I once knew.

Actually, what I just wrote – that I love her no differently – isn’t quite true. In some ways I love this version of her even more.

Because I feel I need to take care of her, something I never felt before when it came to the woman she once was.

Said many times that we value things that are rare. Once in a very rare while, the old Alison will come back and visit us, if only for a fleeting moment. That too makes me love her all that much more.

A song came on one day when I was giving her lunch. It was American Boy by Estelle, a song I referenced years ago before I met her.

Despite the fact that I have no singing voice, at all, to speak of, I sang a bit of it as I stood up to clear off the table.

Take me on a trip, I’d like to go some day
Take me to New York, I’d love to see LA
I really want to come kick it with you

And then I heard a familiar voice I’d not heard in a while sing:

You’ll be my American boy…

Me: (turning around quickly) Alison? Alison? Do remember this song?!
Her: (nods, turns away)
Me: (quietly) We’ve missed you so much.
Her: …
Me: Ah. (trailing) Yes. I’ll be your American boy…

\’

Location: nowhere
Mood: broken
Music: Could you be my love, my love?

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Stay, Gold

Stay Gold

Gold Statue
My dad told me a story once of a man who had a block of gold. He buried it in his yard and would dig it up periodically to admire it before burying it again.

One day, someone stole it and the man was inconsolable. But his friends told him to paint a rock gold and look at that. Because he didn’t use the gold, there really wasn’t a difference between a piece of gold and rock painted gold.

The moral of the story was that money has value only when it’s used properly. But I always thought it a weird story – the man knew what was real gold and what was paint.

Ended up bringing my wife to the emergency room again this past week. Was hoping to avoid it but we didn’t have a choice.

I’ll simply say that this time, I didn’t collapse to my knees but it was still pretty horrible. Waiting to find out more information and the waiting is excruciating.

I’m a lawyer, amongst other things. Not a doctor nor a nurse. I’m not qualified to do much of what I’m actively doing now. But I’m also an auto-didactic.

And the thing I need to figure out is how to save my family. Amazingly, Alison is not the only person in my life with a life-threatening aggressive cancer. In fact, there are three people I love in my life with life-threatening illnesses.

All of which seem to be reaching their nadir at once.

I think I’m of above-average intelligence. Figure most people think the same about themselves.

Yet, what’s the point of all the intelligence in the world if I cannot use to save my family? It’s like that guy with the piece of gold – all my intelligence is useless if I can’t use for the only thing that I care about in this rotten world.

Ever read The Outsiders? There was a kid there named Ponyboy that read a poem called Nothing Gold Can Stay.

So Eden sank to grief,
So dawn goes down to day.
Nothing gold can stay.

His friend Johnny implored him to “stay gold” in a world that’ll hollow out anything of value in you.

In my tin life, my family is only thing of any real value and they are all suffering. The only thing I want is for them to somehow stay.

I have to figure out a way to make that happen.

 

\’

Location: heading to the east side
Mood: weak
Music: I want it real. Run away with me now

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1,000 times an hour

Promises made, promises broken

Watercolor view of the UES, NY,

Nurse: Do you have her password?

Without getting too deep into it, the past week has been the most difficult week at home since November. And we’ve had some awful weeks in the past three months.

My insomnia makes this surreal experience all the more surreal. What little is in color is watercolored and runs together before fading to grey again.

The doc wants us to bring her back to the hospital but she was so distraught and confused the last two times that I feel it’ll only be worse a third time.

Ultimately, I have to make that decision and it is to keep her at home, however difficult that is.

Marriage is such an odd thing. You meet a stranger one night and, a little while later, you become family. To the point where I make decisions for her instead of her own parents, who have been totally supportive of all the choices I’ve made.

I have tremendous respect for them. Her mom is about the nicest person I know and her father – a war hero – is someone I would like to call a friend regardless of the reason why.

We got married five years ago this month. I told them I would always keep her safe.

I’m failing that promise right now. Keep thinking there must be something else I can do.

But there isn’t. There’s only the waiting.

The last time we were in the hospital, the nurse wanted to make sure I was family so she asked for the password I gave them when I admitted her.

It’s the same three words I’ve been saying 1,000 times an hour, every waking hour, since the beginning of November.

Me: Yes. It’s: “Please be ok.”

\’

Location: hell
Mood: struggling
Music: Skies turn to the usual grey

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Heavier than when I left

My thoughts are never far

Subway Station at Bowling Green NYC

Me: I’m off to the gym.
Her: (nods)

Wish I could give you good news about Alison and the rest of us but I can’t. New and unexpected miniature disasters visit us regularly, each one with it’s own particular set of grief and crazy.

It’s exhausting.

Haven’t been able to go fence, even though it’s around the corner, cause classes are only at night.

Did manage to get to my other gym this week, after not going for over a month.

While it’s not around the corner, it’s also not that far from me. Grab my gym bag, which never has much in it – mouthguard, clean clothes, water, and maybe my keys – and 18 minutes or so and I’m there.

It’s strange being back there. The older guys know better than to ask how I’m doing but newer people want to know details of my horror story, which I understand from a morbid curiosity point of view, but I go to forget my problems, not relate them.

Still, I try to focus on being there but it’s hard. My thoughts are never far from her. 90 minutes later, I’m done and start heading back home.

Even though the distance is the same, and my bag should be lighter since I drank the water and am wearing the clothes, instead home seems forever away.

And I struggle with a bag that seems even heavier than when I left.

Me: (cheerily) Hey beautiful, I’m back.
Her: (nods)

\’

Location: snowy NYC
Mood: struggling
Music: minor catastrophes bring me to my knees

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My job is to kill things that need to be killed

Giving us time

Redeemer Church in the Upper West Side
Years ago…

Her: Logan!
Me: (running over) What?!
Her: Spider. Kill it!
Me: Wait, what? Why?
Her: Your job here is to kill things.
Me: …that need to be killed. Spiders are our friends. (turning to spider) Arentcha, little guy?

Friends keep asking if they can stop by and take me out for a spot of rum or maybe bring me out to eat. They feel I need a break. Probably do.

The thing with me is that I have an addictive personality. It’s related to my insomnia, as I can’t turn off my mind.

Now, I feel that every moment of my time has to be spent finding a way of killing this monster that’s entered our lives.

I don’t go to the gym. Don’t cook. Don’t even have time to work.

Instead, I spend my time researching ways people somehow beat this cancer. The largest percentage of my time is wading through pages of medical jargon and separating the crackpot solutions from the things that actually have some science behind it.

All the while, hoping to find something that might lead us home. To our old mundane lives, with our old mundane problems.

Her: Kill it, Logan!
Me: Nope. I’m gonna name him, Hubert.

A Day For Alison

Regarding cooking, I rarely cook these days because my church has been sending us a jaw-dropping amount of ketogenic food – we’re on a ketogenic diet partly because of a well-researched podcast a female gym buddy sent me.

And the food has been organized by an amazing woman I met for the first time at my buddy Bobby’s memorial. She checks in on us regularly, as do many members of my church.

There’s even a fundraiser happening at the end of this month in New Jersey.

Information, donations, and time. These are the most valuable things to us right now, with time being the most valuable.

We just need more time.

 

\’

Location: home, of course
Mood: reasearch-y
Music: One minute I held the key, next the walls were closed on me

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