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Dear Son… 001

Beautiful and terrible things

Me and the kid

Dear Son;

As I write this, you are almost seven months old. I feel guilty that your Grandma McCarthy has been taking the most care of you because I need to focus on your mama.

But you’re always laughing, so I assume that you’re generally happy and oblivious to the terrible things around us. That’s actually why I’m writing you.

A fellow New Yorker – of which you are a proud member – named Frederick Buechner once said, “Here is the world. Beautiful and terrible things will happen. Don’t be afraid.”

(I will quote things to you a lot because I think other people say things far more eloquently than your pop can; you’ll have to learn to deal).

What Buechner said is true, with this caveat: The terrible and beautiful are often intertwined.

By all metrics, your mother should have died on December 10th, when you were just a month old. I say this terrible thing as plainly as I can.

But equally plainly, I tell you: Your mother came back an hour from death – crippled and half-blind – because she couldn’t bear being away from us. From you.

She came back with a titanium mesh where her skull once was. So when I tell you that she is made of titanium, I mean that both figuratively and literally.

She fights every day to see you and hopes to hold you again, like she did when you were born. She wants to see you sit, stand, walk, and run.

She wants to see you become you.

You know, on December 10th, you hadn’t yet learned how to laugh or smile? I think she came back to experience that.

Kid, that is love like I’ve never seen before. If that’s not beautiful, I dunno what is.

This letter is late, sorry. I’d meant to write it months ago but life got in the way. You’ll find that the life’s terrible things get in the way of your plans and dreams.

It’s the nature of the world to whittle you down to nothingness. One day it will win. We accept that in our family. But we fight the world every step of the way because we will not go quietly.

We struggle and scuffle until we’re breathless and weak. Life demands struggle.

Our family motto is a pictograph of a blade in a heart – we survive things that would kill other people. We survive.15207350313_c43e87a6b6_c

Know that the terrible things will come. But so will the beautiful things. They go hand-in-hand.

Your mother is the most beautiful thing that has come into my life and she came with this terrible thing. Neither of us knew. I would not change a thing, except maybe bring her to the hospital the day we met to get rid of this damn cancer. And buy more shares of Facebook. (Always invest your money – that’s another letter for another time).

I will love your mother until the day I die. You as well.

In any case, son: Here is the world. The price you pay to be here is to endure the terrible. So we pay our fare and we take our seat, come what may.

Don’t be afraid. Because you are our son and there is titanium in your blood.

Love,

Pop

Dear Son… 001
Dear Son… 002: Wait and wish
Dear Son… 003: Rain happens
Dear Son… 004: Understanding is gold
Dear Son… 005: Language is telepathy

 

Location: home, after almost a month in the hospital again
Mood: tired
Music: it was then that I knew only a full house gonna make it through

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You’re the hubs

One bite at a time

bed
There’s an old joke that goes:

Q: How do you eat an elephant?
A: One bite at a time.

Think that if I went back in time and saw all that she would have to go through, I woulda crumbled on the spot.

And yet, the dull drip of constant crises in our lives is almost routine now.

Last week was her first Mother’s Day and as well as her birthday.

She spent her birthday by her lonesome getting cut open yet again as we went to the emergency room for the sixth time.

That issue she had in April roared back in a spectacular way – blame myself for trying to keep her from staying yet another spell in the hospital. Perhaps if we just did it then, we wouldn’t be here now.

Wonder if I’m making any good/rational decisions at all. Constantly second guessing myself. There are moments where I wonder if I’ll make it with my sanity – or her’s – intact.

Me: Do you know who I am? Do you know where we are?
Her: (shakes head)

But what else is there to do but go on? And she does, somehow. A bite at a time.

Like I said, there are moments when I cannot believe we will do anything but crash.

But even in those darkest moments, when I sit by her bed and think all hope’s lost, she still manages to pick me up and make me think that we can get in front of this thing somehow. That we’ll make it.

Me: Do you know who I am? Do you know where we are?
Her: Yeah, you’re the hubs. (looking around) I can’t believe we’re here again.

\’

Location: the hospital, yet again. No river to be seen.
Mood: crushed
Music: I think I’m ruined. Didn’t anybody, didn’t anybody tell you?

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My favorite things

May be ok

The kid

For those long time readers of my blog, you know my favorite drink at home is aged rum – on the rocks with a slice of orange, to be specific.

And when I’m out and about, find it hard to resist a daiquiri or an old fashioned with rye.

My favorite foods are chiligyros, and dumplings. In no particular order.

My favorite place in the world is the pier at Riverside Park. My favorite thing to wear is my yellow leather jacket. My favorite things to do are wrassling, fencing, and cooking. In no particular order.

And up until five months ago, my favorite time of day was 10PM, when I went to bed and chatted with my favorite girl about our respective days.

But for the past five months, my favorite time of day has been 7:30 at night.

Because that’s when I would take a shower in my blue bathroom. And with the running water coming out of the best shower head and an exhaust fan that sounds like a wind turbine, I could lean against the shower wall and weep without my wife or little boy knowing.

For the first two months, it was every night I wasn’t in the hospital. Every goddamn night.

As the weeks wore on, it wasn’t every night, but it was still probably most nights.

But as of last week, my favorite time of day is the morning, when I take Alison out to the living room and she sees the baby wearing her pregnancy necklace and smiles.

And he smiles back at her and laughs. My two favorite people in the world.

For just a moment, I think that everything may be ok.

I wish and wish and wish…

\’

Location: ever at home
Mood: hopeful
Location: 20:00 yest, leaving office hating life
Mood: indescribable
Music: On silver stars I wish and wish and wish (Spotify)

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She’s still in the game

Still in the fight

Chad Hernandez
Whenever I’m gone from this blog for a while these days, you can assume it’s because something crazy is happening and I’m too busy to update. This past week was no exception.

We had to go to the hospital on Sunday – which happened to be my birthday – yet again, for both an MRI as well as a new issue that cropped up. After a good deal of negotiations back-and-forth, I managed to avoid our being admitted to the ER for a sixth time. We ended up making it home at 8PM that night.

But then we had some good(ish) news. Her MRI reading came back late – really late – the following day. No new growth. So, while that’s not the outstanding news of shrinkage, it’s far, far better than growth. And what’s more, this is no growth while she’s essentially not had any treatment since January 25th.

Perhaps the best thing is that the old Alison has been making more and more appearances at home. She smiles at the baby and at us, watches TV from time-to-time, and engages us in normal conversation.

Her: (looking at baby) There’s my sweet boy.
Me: He’s getting big – he wears 6-9 month old outfits at 5 months. All he wants to do is eat.
Her: (laughing) Well, he is your son.

It’s the most hopeful we’ve been in a while.

Because of all the turmoil, I’ve not been to the gym but I still regularly speak to my coach there. He was one of the first people I mentioned this to because of all the fundraising he and the gym has done. And because he’s a source of great comfort for me.

Me: Finally, some good news. It’s not great news but it’s definitely not bad/horrific news. We were certain that, after three months of her being in and out of the hospital, it would be bad. Even her doc prepped us for that.
Him: I’m so happy for you. Still in the game with a fighting chance. That’s all you need.

She’s still in the game. We’re still in the fight.


\’

Location: on a sunny street in Manhattan
Mood: cautiously hopeful
Music: If you can hold on, hold on

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When tomorrow comes

Eventually, eventually

Capture
Cooper Union, John Hejduk. c. 1971.

Me: Can you do one more set of exercises?
Her: I’m so tired.

Cooper Union is a private science and art focused college here in the City that’s miraculously granted each admitted student a full-tuition scholarship since it was founded in 1859. That’s changed slightly in the past few years but it’s still impressive.

The fact is that donations have kept the school afloat for all this time and enabled it to not just provide amazing things to its students, but the world as well – they have Nobel Prize winners, Fulbright Scholars, and countless other notable alumni who benefited from this generosity.

And generosity seems to be everywhere around us, particularly this past weekend, when Alison’s relatives got together along with her high school 1friends and had a fundraiser for Alison, which raised far more money than we imagined.

Because of Alison’s trip to the emergency room last week, we weren’t able to go but watching it unfold on Facebook was another humbling and moving thing for us.

The fact is that people donate to places and things like Cooper Union because they think that their money will help, not just the place being donated to, but others as well.

Alison spent almost her entire career working to help others in the world of non-profit. I feel that part of the reason we’ve had good luck with fund-raising is because she’s positively touched so many people. It’s part of why I love her so. I want her back in the world, helping it along.

As for me, I don’t know if I contribute much beyond random musings and trivia. For example, the thing that I always found most interesting about Cooper Union is that the building was built 1853 and it was built with elevator shafts.

But safety elevators weren’t invented until 1857. The reason that Cooper Union built elevator shafts four years before they were invented was because the builders were confident that someone would eventually figure out how to build a safety elevator. They planned today for their tomorrow.

Every day, I push Alison to try to get stronger. She’s weak from the pregnancy, three brain surgeries, three emergency room visits, infections, radiation, and chemo. I should really leave her alone.

But I can’t. I won’t.

Because, like those elevator shafts, I feel that we’ll figure this out eventually and she’ll need to be strong for the struggle ahead. We need to prepare for tomorrow because I hope that tomorrow comes.

With so many people helping us, I think we can get to eventually, eventually. We owe it to everyone to keep struggling.

Me: Just one more set?
Her: OK.

2
Pampered Chef helps make stress-free meals; they’re donating 20% of sales to Alison via this link.

I wanted to take a moment to thank Marybeth W. Madlinger, Meghan McCarthy, and Heather Nerwinski for all their help with the fundraiser this past weekend.

Below are local vendors that donated time, goods, and services to the event so if you’re at all interested in any of them, please click below for more information.

Younique cosmetics and skincare is donating 15% of all sales to Alison via this link until 2016.03.04.

 

5
Jamberry nail wraps is donating 15% of all sales to Alison via this link if you mention Alison.

 

6
Em’s Pens is donating a portion of sales if you mention Alison when you order here.

 

4

 

Thanks again to everyone to went and have continued to support us since this whole hell started.

 

\’

Location: home, of course
Mood: cautiously hopeful
Music: feeling very small underneath the universe

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Felicitous

All emotional pain and joy is the same

Snow covered bicycle in NYC

For everyone that shared my letter to Vice President Joe Biden, thank you. I’m hoping that it will find its way to him somehow. And if you’ve not shared it, please consider doing so?

Alison finished her radiation and chemotherapy this week. The standard route is six weeks but ours was only three because the surgeon took out so much of the tumor.

Doctor: In some ways, her collapsing was felicitous. Because the surgeon did a beautiful job cleaning up the tumor. And we can also reduce the number of treatments.

I agree. If nothing else, not sure Alison would have been able to finish a full six weeks of chemo and radiation. The toll of just three weeks – both mentally and physically – is shocking. The last day of radiation and chemo was…difficult. And now, we wait.

Waiting is always its own special hell. Because we form expectations of what might happen: too high an expectation and you’re dashed when reality falls short; too low, and you spend more time in anxiety and distress than necessary.

My whole life, I’ve always wondered the meaning of Hope being the last thing to escape Pandora’s Box.

Was Hope last out of the box because it’s the one bulwark against all of the evil of the world? Or was Hope last because is it the worst of the worst?

Because all emotional pain and joy happens in that gap between what you hope and what you actually get.

  • If you expect to make $20,000 a year and you make $100,000, that $80,000 gap is joy.
  • If you expect to make $100,000 a year and you make $20,000, that $80,000 gap is pain.

For us, we remain hopeful. And we wait to find out what is felicitous and what is not.

Her: (waking) What do we have to do today?
Me: Rest.

\’

Location: with our son
Mood: hoping
Music: Hold on, I feel like you could shine

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Companionship

Someone to sit and eat with

The word companion comes from late Latin, with com meaning with and panis meaning bread.

Essentially, a companion is someone with whom you do these daily mundane things, like sitting down and eating.

When my wife first got sick, I slept on the floor next to her hospital bed for a week. Said I did it because I didn’t want her to be alone, which was true. But equally true was that I didn’t want to be alone either.

Nurse: You can’t sleep here.
Me: (lying down) Let’s find out.

I’m sorry for the lack of updates – especially to those that have so generously donated.

On December 10th, Alison was unresponsive so we rushed her to the hospital. There, the doctors had to remove part of her skull to save her life. They said she might not survive the night. I fell to my knees.

But she survived. Then she had another surgery just a week later. That’s three brain surgeries in a month, just days after giving birth.

To say that my wife is crazy tough is like saying that New York City is a small town. She’s made of steel.

Unfortunately, she’s been in the hospital since the 10th and will be for quite a while. I’m there most days; other days, other relatives are with her.

This is not how we imagined our first Christmas and New Year’s as a family.

Still, I go to the hospital and have bread with her when she’s able. When she’s not, I just sit there. And we dream of home.

She would do the same for me, because she’s my companion and I’m her’s.

Me: (arriving, breathless) Hey, beautiful.
Her: Hey.

Location: The same hospital room, still looking at the same river
Mood: still heartbroken
Music: Somedays I’m built of metal, I can’t be broken. But not when I’m with you

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The sun always shines on TV

The love of my life is sick

Screen Shot 2015-12-16 at 2.41.04 PM
When I was a kid, the hottest music video was a song called Take On Me. In it, a comic book character comes to life to be with a woman he loves. It ends with them happily together.

Unfortunately, there’s a follow-up video that few people heard of called The Sun Always Shines on TV, where you learn the rest of the story – he cannot stay and they don’t end up happily ever after.

I once said that all stories end sad; every relationship that matters will always end in tears. That’s the nature of the world. But I think the unexpected tragedies are the hardest. That’s when life knocks you to your knees and you can’t stand up again.

My wife is sick. And on top of the sickness, we have all the bonuses that come with the sickness – the fear, the uncertainty, the loss of control, etc.

Yet I hold out hope that somehow, this isn’t all of our story. That we can find a happy sequel to this news. And in the end, I want what everyone wants when they love someone – for them to stay.

Please stay with us. Please stay with me.

Location: A hospital room, looking at the river
Mood: heartbroken
Music: there’s got to be some way to keep my troubles distant

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We were given treasure

People don’t realize what they have

Vases in a Window Display

I have a problem with people’s ingratitude.

That’s probably why I get so irritated with people who’ve never lived in NYC in the 70s-90s and miss the “gritter days.”

It’s easy for them to miss something they romanticize in their heads.

Me? I look at the ability to walk down the street and not be concerned about getting shanked a gift.

Speaking of gifts, after 9/11, people around the world sent their condolences and … stuff. Nations flew their flags at half-mast, dignitaries cried. What one might expect.

But a small tribe of Masai warriors in remote Kenya also heard about 9/11. Most had not even seen a plane before and couldn’t fathom buildings that tall. But they understood the magnitude of what had happened.

And so these incredibly poor people – “poor” in our economic understanding of the word – sent the United States 14 cows.

For the Masai people, cows are everything. They are, in fact, the single symbol of wealth as their entire culture revolves around cattle.

In any case, these 14 cows were accepted by the US but cared for in Africa – along with a reverse donation from the US of scholarships for the children there.

They’re still there, now numbering 35 or so.

I can only assume that the American ambassador that was given these animals realized that he was given treasure. Things that these people had worked for their whole lives.

Wonder what would’ve happened if the Ambassador didn’t realize what he’d been given and instead thought he was just being given a random buncha dirty animals.

It bothers me when people are given treasure and do nothing but complain about how it’s not good enough.

A 30 year-old man here in NYC just allegedly killed his father because he wanted more allowance.

People don’t see what they have – often through sheer dumb luck – they only see what they think the don’t have.

They possess treasure but no understanding that they do.

Exhibit at a Museum in NYC

I wrote this entry before I turned on news today.

Gunmen broke into an office building in Paris and executed a number of people including a wounded police officer.

It’s a scary world we live in today.

Location: in front of a large cuppa joe
Mood: sad
Music: I guess we thought that’s just what humans do

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The worst day I’ve had in a while

Google will replace a cracked Nexus 5 screen for free

Cracked Nexus 5 Screen

Was out in Brooklyn meeting a client in the summer heat two days ago. Got mixed up and ended up being 20 minutes late – and I’m rarely late. Not a good start to a rough meeting.

Grabbed a bus to avoid walking in the heat and, when it lurched, heard a crack in my back pocket. My less-than-six-months-old Google Nexus 5 just bit the dust.

Then I got home and got confirmation that I lost my biggest and oldest client; they hired an in-house counsel. All-in-all, a rough day.

But then I saw more headlines for ISIS and the poor fella that they killed.

And my friend – who works for a non-profit – told me that he just received an email.

It seems that, because of the ebola epidemic, prices for food and other staple items are skyrocketing. The people he works with in Sierra Leone  – who are a very, very proud people – were asking for a slight and temporary stipend to be able to afford food to feed their family.

How much were they asking for?

$20 extra. For the month.

Suddenly, I felt really ridiculous about my worst day.

It got even more ridiculous as I found out that, 17 hours prior to my cracking my Nexus phone, Reddit just released that Google Play would replace any cracked Nexus phone purchased through them for free.

20 minutes after I called Google, got an email that a new phone would be shipped to me free of charge in a week.

I’ve said a few times now that all emotional pain comes when your expectation of reality doesn’t match reality.

I’ve also said that I’ve got no complaints. I’ve got my people, my pad, my poison, and my person.

Couldn’t really wish for much more.

Google Red Nexus 5 replacement

While writing this, UPS came by with my replacement phone. In less than 24 hours. Amazing.

———–

The following are charities that work in Ebola-afflicted countries and all have three or four stars from Charity Navigator. Skip your morning coffee, send them a fivver, and feel good about the rest of your day.

Location: NYC, where there’s no ebola
Mood: so grateful
Music: Hold on, hold on, we’ve got the lights dear
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